PAH (pulmonary arterial hypertension) is a heart and lung disease which can strike anyone at any time of life. With symptoms including tiredness, shortness of breath and nausea, it resembles other more common diseases like asthma and COPD, which means it can take a while to conclude the correct diagnosis. Without treatment, the median survival time for PAH patients is just under three years.
PAH-forum.se is a site which is completely dedicated to PAH: how the disease is detected, how it feels and how it is treated. The site is full of accounts from patients, films and everything worth knowing about PAH. The PAH forum is aimed at people suffering from PAH and their relatives, and people who have not yet been diagnosed. The aim is to ensure that more people are diagnosed earlier. Listen to stories from patients, get answers to frequently asked questions and pick up advice and support for people living with the disease.
To raise awareness of the disease, a direct mailing has been sent to doctors who encounter patients with symptoms that could indicate PAH.
A brochure for doctors to guide them through a PAH examination, i.e. what tests to use and what to include in the PAH referral.
Postcard to the healthcare sector
On the front of the postcard are quotations from patient interviews on the PAH forum. This is to arouse curiosity to find out what disease this might be, and the answer is on the back.
Patient brochure on exercise and training
Training and exercise are an important part of the treatment. This brochure, produced by a physiotherapist, contains information, advice and exercises for people living with PAH.
PowerPoint-presentation disease awareness
PAH is a rare disease, and unfamiliar to many doctors. An early diagnosis is crucial if patients are to survive. This presentation is intended to raise awareness of the disease and how to identify it, so more people with PAH can get help.
All material aimed at the public is based on the graphics manual for the PAH forum.
Used e.g. on pages like doktorn.com, where PAH is mentioned.